Despite being born with an incredibly rare condition that causes his skin to blister and tear with the slightest touch – John Hudson Dilgen is inspiring people with his motivational speaking. John, 15, was born with Epidermolysis Bullosa, a condition that leaves him in constant pain and affects only one in every 50,000 children in the United States.
On a daily basis, John has to have the majority of his body wrapped in bandages to save him from infections and further harm – around 95 percent of John’s body is covered in open wounds.
To find out more, visit: www.ebresearch.org
For more info, please visit: https://tunnel2towers.org
The motivational work John does is for the EB Research Partnership: www.ebresearcg.org
Video Credits: Videographer / director: Adam Gray Producer: Nora Hakramaj, Ruby Coote Editor: Beth Angus
Barcroft TV: https://www.youtube.com/user/barcroft…